Reply to Feeling so blue...How to live with DD's chronic illness?

Forum Index » Kids With Special Needs and Disabilities

Reply to "Feeling so blue...How to live with DD's chronic illness? "

Subject:

Emoticons





More smilies

Text Color: Font: Close Marks

[quote=Anonymous]OP, check out different support groups for GI issues -- IBD, Crohn's, chronic constipation, and encopresis. There are probably several more. We are conditioned to believe that medical issues unfold like a hour-long episode of "House" -- with the troubling onset, the period of suffering, and the diagnosis and therapeutic conclusion.  I would say that fully half the chronic conditions that children on this board suffer from do not follow any clear diagnostic model and even those that do fall into loose categories like "genetic mutation" or mitochondrial disorder.  Many children also have more than one diagnosis.

Get support where you can.  If your child's GI issues involve anxiety, and it sounds like they do, get support for that from anxiety groups.  Get practical tips on managing GI issues from the Crohns/IBD/encopresis groups.

Think outside the box and be creative. Have you tried Facebook?  It has a wealth of support groups for almost every condition.  I would just start joining, and you will get a sense of which ones are active and helpful.  You can read old posts; you don't have to out yourself or broadcast personal facts.
[/quote]

Options

	Disable HTML in this message
	Disable BB Code in this message
	Disable smilies in this message

Review message

Search Recent Topics Hottest Topics