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Kids With Special Needs and Disabilities
Reply to "Feeling so blue...How to live with DD's chronic illness? "
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[quote=Anonymous]I'm the PP and I just read the rest of the responses. A lot of good advice on this thread which you seem to be taking to heart - that is great. I just wanted you to know that I (the poster with Crohns, which I know is not what your daughter has), eventually DID go again to camp, participate in school activities, go away to college. It just took time, to learn our "new normal," learn what worked/didn't work, learn makeshift solutions when out of the home, etc - also time to accept that I wasn't going to be doing things in the same way or on the same timetable as I once assumed. But once I saw I could still do most the things I wanted to do, with appropriate modifications, I began to do more and more. For a long time you are focused on the diagnosis and how to manage the illness. Eventually you start to focus on how to manage your lives. Sounds like that is where you are now. Again GL, you can do it.[/quote]
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