Reply to Misdiagnosed?

Forum Index » Kids With Special Needs and Disabilities

Reply to "Misdiagnosed?"

Subject:

Emoticons





More smilies

Text Color: Font: Close Marks

[quote=Anonymous]NP here.  My DS has a significant language/communication disorder.  About 2 years ago, I spoke with Mary Camarata and found her to be knowledgeable and helpful.  We ended up not going for an appointment because we were able to get what we needed from the school (it was an IEP battle that led me to contact her).  What's been immensely helpful on this long road we've been on is having excellent assessments along the way.  The first was done when DS was 2 through NIH for kids 2-5 yo suspected/diagnosed with ASD or other developmental delays.  At the time we joined, DS was receiving PT services through EI and was waitlisted for ST.  He had not been evaluated by anyone other than EI and we did not know if he also had ASD or not.

A multi-disciplinary team from NIH team assessed him over 2 days.  Their conclusion was that he did not meet the criteria for ASD but he was delayed enough to continue in the study.  I got an excellent debrief from them and a written report.  I can't overemphasize how important that evaluation and report have been.  We have never avoided or feared an ASD diagnosis (when your kid is as challenged as ours, you're just looking for accurate information) and in the early years, it really didn't matter because the interventions were similar/same.

My advice is to seek an study or evaluation that takes a multi-disciplinary approach.  It can be difficult to tease out why certain symptoms are present but when the child is evaluated across environments/areas, you can get a better picture.  You may not know what it is but you might be able to determine what it is not. GL.[/quote]

Options

	Disable HTML in this message
	Disable BB Code in this message
	Disable smilies in this message

Review message

Search Recent Topics Hottest Topics