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[quote=Anonymous]

OP - You are correct that what I wanted to be sure you thought about carefully was how to ensure the fullest coverage for your daughter long-term. I am not sure what you have done so far so my suggestions would be:

1- If you do not have or have not updated in several years, your will, powers of attorney, health care directives,  any trust and Special Needs Trust for your daughter, then do this first to get your house in order.

2- Working with this attorney then see what you need to do for and/or with her consent to help her decision-making at least at this point in time possily including:

a- Getting advice on the transfer or spend down of any of her assets which effectively would rule out qualifying for Medicaid for five years.

b- Getting advice on what is needed to help her with decision making in terms of:  power of attorney for her, health care directive for her, having her sign all waivers legally with her health care providers so you and DH can be involved in decision making, including hospitals and testing centers.

c- Getting advice on guardianship in terms of health care decisions possibly.

3- To save yourselves some money, go to www.ssa.gov and start reading over the pertinent topics under:

a- Supplemental Security Income

b- Disabled Adult Child Benefit (or possibly Child Adult Benefit)

c- Social Security Disability Insurance

4- You can at least start the process of applying for SSI or SSDI online or  you could even call to talk to a representative to explain your situation and get the best advice on which benefit to apply for first for your daughter.  If Dad has the quarters with Social Security, it may well be best to go for SSDI to start the 24 months ticking off to qualify for Medicare.  ***I have no idea if one can apply for SSDI+Medicare and then later on when say assets are transferred or spent down, then go for Medicaid (you do not need SSI to apply for Medicaid as it is more that getting SSI just about always qualifies one for Medicaid.)

I think in your case finding a good lawyer who is likely to be around with associates and could get to know your daughter, too, so as to be able to work with her in the future would be important to giving you some peace of mind.  I hope I have at least pointed you in the right direction.[/quote]

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