Reply to The Kids Who Beat Autism: New York Times

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Reply to "The Kids Who Beat Autism: New York Times"

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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]Kids can't "lose" an autism diagnosis. That's sort of like saying in the middle of a gestational period, that a woman is no longer pregnant. If they no longer had a diagnosis of autism, it's likely they were misdiagnosed to begin with.

Children can show very autistic like behavior but not have full blown autism.

Stupid, stupid researchers out there and doctors diagnosing our children.[/quote]

And WHO are you PP? People figure out medical things all the time. Jeez, there is no reason to believe there will be no progress in autism. I'm glad there are people out there with open, inquisitive minds willing to work on things like this.[/quote]

Who am I? I'm a parent of an autistic child who has probably ever therapy known from the age of two on. I left my legal career to do nothing but help my child and I left no stone unturned. My child was very high functioning to begin with and, despite all efforts, we see very little difference. My husband is a doctor who sees children with ASD all the time also. I never stated there would no progress in autism, simply that progress will not be enough to take you out of the diagnosis. It will not. So fuck you for your attitude and ignorance. When you have tried every known therapy or treatment, then write on this thread. [/quote]

Not sure what any of this has to do with the article.  It may be that some forms of autism respond much better to treatment than others.  You seem to take that as a criticism that you haven't done enough.  Not sure why that is, but your experience is your experience and actually has very little bearing on what is reported in the article.[/quote]

The article is very clear that some kids respond better to interventions while others do not.  I wouldn't be surprised if there are many different types of "autism" caused by different things so it's not surprising that some variants are more curable (or even outgrown) than others.[/quote]

This is why lumping together all these similar characteristics is a problem.  We have done therapies and they did help. We tried aba but did not find it more than ot and speech as we did not have other issues as the doc tried to tell us we did.  Sometimes as a parent no matter how much you try, it may not help.  They do not know what air ism is and I think it is an after product of a variety of things. For us, we had medical issues at birth and possible drug exposure.   Doc ruled that stuff out but I disagree. Genetic testing came up with nothing.  It's hard.  They do not know what it is and the fix is interventions, some which work and others do not depending on the child.

To the parent who posted upset.  Till someone is in your shoes they will not get it.  They are not part of that core group of parents running to evaluations, schools, therapies and activities that consume your life. They are not the ones where other parents and kids dismiss you and your kid as lessor.   They are not exhausted with worry about their child being able to function alone in the world when you die.  I get those comments but I took the article as support for why more funding and help is needed.  I went into reading it annoyed at the title as those kids are not cured.  They are just the lucky ones who could pull out of it better than others.  They are far from cured. [/quote]

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