Reply to Full time working mom with child in need of multiple interventions

Forum Index » Kids With Special Needs and Disabilities

Reply to "Full time working mom with child in need of multiple interventions"

Subject:

Emoticons





More smilies

Text Color: Font: Close Marks

[quote=Anonymous][quote=Anonymous]OP here.  DD is 4.5 -- starts K a year from Sept.  She is in full time center care right now.  It's a good center with a strong curriculum and loving and aware teachers.  She has had hypotonia issues since infancy and now auditory processing related issues as well as fine motor limitations are emerging.

I think the hypotonia and capd issues are the most significant, if I have to prioritize (and I will because insurance only covers 40 OT/PT a year).  OT can be managed at home with a lot of hands on games and interactive play, with periodic check ins.  The CAPD, however, is something she needs strong coping skills for.

We are in Fairfax Co and our child care center works with Child Find very, very well.  They are close to Forest Edge and Aldrin, where many of the PreK services are coordinated.

She is a very strong visual learner and logical thinker, so it's a matter of helping the pieces come together in my opinion.[/quote]

If you are only really looking at one year of intense therapy, I would go the FMLA route for you and your DH.  DH job HAS to be flexible wrt FMLA.  One day a week he can leave at 2:00pm and and do that day's therapy- which give you one day a week to work late.

Life isn't fair and having a special needs child reveals that over and over.  One of the things is that there is more parental time required for a longer period of time than NT children and many of today's careers (especially in the DC area) are not accommodating to that dynamic.  Another is that it special therapies cost more too.  Another is that one parent (or both) frequently tends to have to curtail work (reducing hours, going part time or quitting altogether) and that adds even more cost.  Something has to give.  It can be going to a bare bones budget where retirement and college savings are used to help pay in the interim. Often times college will not be an option unless more is done now and that costs money.   Another is to borrow money or time from relatives.  It can mean down sizing to a much smaller house or apartment to afford the better school or a sahp.  Others move out of the area entirely.  It really depends.

Your posts are giving off a feeling that what you need to do is transient and that you don't want it to affect your life negatively in any way shape or form- I am sure that that is not what you intended, but that may explain some of the more negative responses.   I am sorry that you have been  the recipient of those.

I would also say not to rely on the school to provide the OT/PT you think she will need and to assume those costs and time constraints will continue for several years after she enters kindergarten.  IME and many on here, they provide a very minimum level of support.  We supplemented the school's therapies with private the entire time.  When the school does an assessment, they look at "average" and average can be at the 25th percentile or the 16th depending on the measure.

Good luck and I hope you find the schedule that works for your family.

[/quote]

Options

	Disable HTML in this message
	Disable BB Code in this message
	Disable smilies in this message

Review message

Search Recent Topics Hottest Topics