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Kids With Special Needs and Disabilities
Reply to "how do I get over my own shit to be a good mom to my extremely SN kid?"
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[quote=Anonymous]Hugs to you, OP. My SN kids don't have anything like your DD's challenges. But, we did care for my FIL the last 2 years of his life. He'd had a massive stroke, was paralyzed on one side, couldn't toilet and descended into dementia and depression. It took an incredible toll on our emotional health, our releationship and our finances. It also led DH and I to have some brutally frank conversations about what we wanted for ourselves should we end up like his father. For me, I believe that just because medical interventions are available doesn't mean they must be utilized. If/when my quality of life becomes as poor as my FIL's, I don't want medical interventions - including the medications used to control routine ailments like blood pressure, diabetes and stroke risk. Stop all medications. My DH couldn't make that decision with his father and I doubt he could make that decision regarding me. DH feels too much like he'd be killing me - but he says he would want me to stop his medications if he were like his father. This is why we've also had these conversations with both sides of the family and our kids. I want there to be no doubt as to what I want for me and what I don't want for my kids. I'm really sorry for your situation because it sounds so very tough. [/quote]
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