Reply to Non-Celiac Gluten Sensitivity May Not Exist

Forum Index » Health and Medicine

Reply to "Non-Celiac Gluten Sensitivity May Not Exist"

Subject:

Emoticons





More smilies

Text Color: Font: Close Marks

[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]Glad to know my kid had failure to thrive and chronic constipation due to something that doesn't even exist. Silly pediatric gastroenterologists! The 5 of you we saw over a 4 year period should have told us it was all make-believe. [/quote]

Or if you read the article you would see that it could also be something like FODMAPS rather than the gluten itself. How did they conclusively diagnose a gluten sensitivity? I am not aware of any tests that show a positive result for that. Celiac - yes. Gluten sensitivity - no. Mostly it comes from elimination diets and trial and error, neither of which are specific to gluten.[/quote]

Or you could not assume I don't know about FODMAPs. We spent 4 years with top-notch doctors doing biopsies, on elimination diets, laxatives, and the only thing that helped was cutting out the gluten containing foods. My kid grew inches, put on lbs, and finally looked like a four year old and not a Biafran toddler. If it doesn't contain gluten it doesn't cause her trouble. She's 8 now and knows more about nutrition and allergies than most adults. Sorry my kid's happy ending doesn't fit your pet theory.[/quote]

NP here. Interested in your child's diagnosis. So it's not celiac disease and it's not FOCMAPs? What was the official diagnosis? In addition to gluten, is there any other food your child has to avoid?[/quote]

Officially, non-celiac gluten sensitivity. Her small intestinal vili were completely flat.[/quote]

another NP here.  I find this very interesting.  The fact that the villi were flat would totally make you think your DC had Celiac Disease.  I was diagnosed with Celiac Disease almost 20 years ago and in my research haven't run across any other condition that flattens the villi like CD.  Has your child been tested for the HLA gene that includes Celiac Disease?  And had the blood test for it?  If the blood test came back negative, why did the doctor perform the small bowel biopsy to determine the flattening of the villi?[/quote]

PP here - forgot to ask if your DC had a second biopsy done after being GF for a while to determine if the villi grew back?[/quote]

No, but within 2 months she began to put on weight. She did a year's worth of growing in about 5 months. Within 2 years she caught up to her peers for the most part. Clearly, nutrients were able to enter her system as they hadn't before. Her doctors are pretty confident.[/quote]

Options

	Disable HTML in this message
	Disable BB Code in this message
	Disable smilies in this message

Review message

Search Recent Topics Hottest Topics