Reply to How many second opinions? Or when to stop assessing preschooler if nothing seems to fit?

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[quote=Anonymous]OP here, thanks to all who have continued to weigh in. Thanks especially 9:53 for helping to decipher the billing codes.

I've followed-up with Shapiro -- they won't open to new patients until April, so I've asked if they'll put me on the waiting list that they will start working down in spring, and asked if they'll consider seeing her past her 4th birthday. If they say no, that's out.

Meanwhile, we've got appointments at NIH in January. At least those are 4 hours interviewing the parents and 4 hours of testing. But point taken about the bad days. In our case, the assessors seem to catch DD on a good day and then wonder why we think there's a problem.

I do understand that this is a process, rather than an event. I'd be ok with letting things go if we weren't continuing to have disruptive behaviors. So we'll keep treating the behaviors and symptoms with behavior modifications (consistent, positive reinforcement charts) at home and school, and try group therapy for the anxiety. I do trust my gut, but my gut isn't sure. This could just be her strong will and temperment that we have to address the best we can. I just know from seeing her around other kids that her behavior and reactions are more extreme than other girls her age.

And beyond that, we'll just have to wait for her to get older and see how things develop. Maybe we'll get to see Shapiro in 6-12 months, before she turns 5, and things will be more obvious then. If no diagnosis follows, so be it. At least we'll have done the best we can to help bring the right, supportive environment to her life and ours. [/quote]

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