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Kids With Special Needs and Disabilities
Reply to "Non-consented IEP - SLD reading "
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[quote=Anonymous][quote=Anonymous][quote=Anonymous]Could you get an academic language therapist to see your son three times a week, maybe before school? Our kids are exhausted after school - I hear you and understand it is hard and not ideal. So if you can’t make that work, maybe you can make twice a week before school (when fresh) and one on the weekend work. ASDEC can get you connected with a provider. If there are none in your area you can do virtual - it actually works quite well. The school SHOULD teach your kid to read. But they won’t, and you don’t have a lot of time to waste. So you’ve got to do what you’ve got to do. To be honest I wouldn’t worry about decodable books and what materials are sent home. What your kid needs is pretty specific, and more practice in skills they haven’t been effectively taught yet wont help. [/quote] OP here - thank you!! I will look into ASDEC. I HAVE had some very positive conversations with several of my colleagues AND I think I have a better idea of how to proceed and my next steps. It's awkward because of my professional role/boundaries, ect. but my job is to advocate for MY child and ensure his needs are being met, so I am tapping into my relationships with CO staff. I had a good convo yesterday with the person who ovesees all of student support/sped/student services, ect (I am trying to be fairly vague with the label), who I know very well and have a very positive relationship with. We had a good conversation and they were very validating, encouraging, and had some good ideas for next steps and how to approach the conversation. They seemed pretty surprised with what was proposed and the response from the team, but of course can only comment on it so much. I am preparing written follow-up to the sped team with concrete, clear information with data and evidenced-based language and requests backing it up. I'm not caving in at all, period, but while navigating all of this, I will look into outside resources too. I AM extremely privileged to work closely with some sped teachers and various staff, so that I can process with my work-friends....who were amazing to talk to. I wish one of THEM could be his case manager lol but that's not possible or appropriate of course. Thanks!! [/quote] You sound like one of my friends, who was always into the "tapping into her network" and "having very good conversations". And yet she didn't get her child a neuropsych until said child asked for it, when she was 16, and it turned out there was dyslexia, which had never been specifically remediated. Instead my friend had spent years reading with her child and helping her with homework, and in high school paying for tutors. Said child is not college bound. She cannot read well enough! Her career options are limited. To say her parents are bitterly regretting their parenting choices is an understatement. I don't quite know how to tell you that your approach seems off. I don't know how poor you are, but your money needs to be channeled into getting her an evaluation for dyslexia, ASAP, and a reading instructor trained to use methods for dyslexic children, ASAP. Eat ramen if you have to, and forego all paid entertainment and beg your parents for money. Reading is fundamental to success, and what I mean by that is that you don't want to be paying for your child's living expenses all your life, because they can't quite make it by themselves. This is very pragmatic, OP. We're talking a certain outlay of money spent now, to avoid a WHOLE lot more money spent on subsistence living later, along with dashed hopes and dreams. I'm serious. Your path is very clear. You need to make an appointment for an evaluation. Surely there's a psychologist or similar who can do the shorter battery of tests for dyslexia separately from a $5K 8hr neuropsych (OK, maybe cheaper in Shenandoah Valley than here in the DC area). I see the number of tests done to my kids in their full neuros: it's an incredible number! Maybe you can wait some years for that. Your kid just needs the dyslexia battery for now. While you wait for the appointment, given dyslexia is likely, you can start contacting Orton-Gillingham tutors near you and ask for rates. If you can't afford it, then you'll need to figure out a way. I think that "way" might be to watch Youtube videos, snag O-G material from somewhere and start moonlighting yourself. That's what I would do. You're smart enough, and an educator. I don't want to offend you, OP, but you seem like you're stalling and trying to manage all your relationships vis-a-vis your profession, when really, your child's needs are your priority and you can address those without replying to a single person or engaging a hundred new people into conversation. Ignore the school. They do not matter. All your professional posturing does. not. matter. Sorry to be so blunt.[/quote]
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