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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]I would caution going too far out of your lane. We've had educators do this and create problems. We were told our child seemed to be having seizures by the school OT and then the principal. We met with a neurologist and took our child in for an EEG. After all the stress that this unleashed, we found out that there was nothing wrong/everything was normal. The OT was still not convinced and tried to get us to have an MRI. Our neurologist refused.[/quote]

EEGs frequently cannot detect epilepsy unless the person is actively having a seizure or had one within a few hours. I'm surprised you didn't want to do the MRI just to rule out some bad possibilities. [/quote]

If you're trying to suggest that an MRI would have shown a tumor or abnormality, that would hardly have resulted in just absence seizures.  [/quote]

Really?  Because everyone who I know who has had a seizure (except febrile) in the last 10 years have all had MRIs (or CT scans before that). Even those who experience absence seizures. The two neurologists that we've worked with (on two different patients) both suggested one right away to rule out lesions, tumors, or structural abnormalities. And out of the 8 people we know with epilepsy (most from support group) only 2 have had an abnormal EEG. And fortunately everyone has had a normal MRI.

Anyway, I'm surprised the neurologist didn't recommend getting one. Maybe because a parent didn't directly see an episode? [/quote]

Episode? I'm not sure anybody saw an "episode" with our child. What happened was the OT, who saw our child once a week, was pushing this because of some spacing out that she saw. We went ahead and did the EEG. We as parents hadn't noticed what the OT was describing, but we did it anyway because she was so adamant about it. Once the EEG came back perfectly normal, the neurologist and the pediatrician didn't think further testing, especially an MRI, was necessary. The OT was still sure this was happening and tried to get us to do an MRI. For what it's worth, you can't just walk into Children's and say you'd like an MRI. A doctor has to order it. And our neurologist was against it.  [/quote]

Like I said, I'm just surprised he didn't order one given that it sounds like it's part of the preliminary workup for most patients that present with seizures.  I guess the OT's information wasn't compelling enough.  Maybe the neuro was waiting to see if he had additional episodes?

And, yes, I'm 100% aware of what is required for a child to have an MRI.  [/quote]

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