Reply to SN parents, why don’t you disclose or share?

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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]OP it sounds like your concern relates to one family so why are you making it about all SN families?[/quote]
While hers might sound like it, we know it's about many families. There are many more who ignore it all.
We had that happen in extended family. We knew a person over a decade and nobody says a word. [b]When life got hard, it got really hard for them, and nobody knew why. Too late now.[/b]
Don't want to know or want to hide, keep them safe. Others can't do it without some of that information.[/quote]

NP.  Knowing some letters would not have made anything easier except your curiosity.

For the OP, kids are different in different situations and environments.  It's quite possible that the family doesn't know what information you would have liked to have, either because it's not an issue at home or it's not an issue for them.  [/quote]

When soothing the kid, she said she only eats X. Ever. When I asked the parents, they did confirm but also said they didn’t know why she was being so picky. Of course she is more selective on comfort foods in a different environment. To me, this was such an easy solution.

This was the path of discovery for many things over the week. I don’t care if it’s labeled a quirk or an SN, i just want kid to have a good time here if i am tasked with watching her as a favor. 12+ hours out of my week, and my child’s is a lot and we deserve the kindness of understanding. We can be empathetic but we could also be armed to help reduce the stressors that made everyone uncomfortable.

I guess what gets me is meeting this kid for a few minutes, you see that she is very particular. We adore her anyways and want her in our
Lives. I just wish the parents knew that we are actually here to help, but that help requires a meeting of truth. Finding out her “things” when they are stressors isn’t my job. [/quote]

No OP, nobody owes you their child’s personal medical details. If you don’t want the child at your house just say so. And for the child, if you actually care, having her speak for herself to you is actually good for her. You seem to think the parents confessing “she’s autistic” w open some magic door. It’s a weird belief. [/quote]

I think I said in my OP that I don’t need a diagnosis. What I need is to know her particular “quirks” so it makes it a safe and happy environment for her, my kid, and me. But I keep finding out things that would have made things so much easier had I known them before this all started. I truly don’t care about her diagnosis- I care about knowing the things that will make her happy and feel
Safe, but I feel like those are under local and key as I suspect they’re tied to the more complicated umbrella of a diagnosis.

That said, your answer says a lot about why I haven’t been told I can only serve x juice and x flavour chips by x brand and can only offer x activity. [/quote]

This kid is unreasonable regardless, decline.[/quote]

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