Reply to teen with new dairy allergy

Forum Index » Food, Cooking, and Restaurants

Reply to "teen with new dairy allergy - food ideas please"

Subject:

Emoticons





More smilies

Text Color: Font: Close Marks

[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]OP glad to hear you are tracking with a registered dietician and I hope also with an allergist on this new development. Many allergy-aware families already know the harm of an elimination diet when an allergy is unknown, its use should be short term and with the right guidance. You should also hopefully already know it is not the preferred method for diagnosis of an IgE-mediated allergy.

If your teen has other anaphylactic allergies like you say, I suggest you speak with your allergist about Xolair and whether that may be a good fit. Best of luck.[/quote]

DP. I asked my teen son’s allergist about xolair and he said none of the practice’s patients are getting approval from their insurance companies and it is exhorbitantly expensive and unlikely to come down in price. Also, what do you think about the cancer link? Thanks for your thoughts. [/quote]

Often when an expensive drug gets newly approved (or in this case, a new use approved), insurance companies make you jump through hoops. Our Xolair rep told us to expect that and it has been true. Almost every new Xolair script for food allergy in our office has been denied, gone to appeal, denied, gone to peer to peer, then approved. This will get better over time and the company keeps us decently supplied with samples so there's no delay to patients.

The cancer link was associated with a small, poorly screened study from two decades ago. The results of that have not born out in twenty years of clinical use. There is a true risk of anaphylaxis to a minute subset, which is why the first three doses are typically done in office. Both of these are great questions for your allergist, also Xolair has medical liasons that will answer these questions in detail.

This is an important directional shift in food allergy management. If your allergist is not getting onboard with that, you might question that.[/quote]

Thanks for this information (I’m the pp you responded to). Our allergist is at Institute for Asthma and Allergy, and we’ve been pleased with the practice for many years (DH and I go there as do both our kids), but I agree with you I need to question them harder why they seem resistant to trying xolair for my kids (now teen/college student) with anaphlyactic food allergies. I did slightly press the issue at one of my kid’s last appointment, and was told it is unlikely the price will come down even over time bc it is a biologic, but that’s not a good enough answer. [/quote]

Options

	Disable HTML in this message
	Disable BB Code in this message
	Disable smilies in this message

Review message

Search Recent Topics Hottest Topics