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[quote=Anonymous]OP - thank you for sharing your own stories, it does help to know there are other people going through similar experiences.

In response to why this is happening to our daughter- we don’t know. I can say reflectively that she has always been disregulated, even as a newborn. Even as a toddler her tantrums were more extreme than a typical peer but easier to write off as normal development. Her doctors and treatment teams have not identified a reason but rather diagnosis.

I have thought about taking leave from my job and have had to take short term leave during both of her hospitalizations.  My job though is the only place I can feel somewhat normal and is something I really enjoy. It is an escape for me. I also realize that I may have no choice soon, especially now that my other child and husband need to be in a different location.

If anyone has experience with a residential treatment or therapeutic boarding school please share them.  This is something we are exploring but it is a very scary thought. I don’t want her to go somewhere that causes more trauma.

Weekends are hard and this thread really helped me get through yesterday. Thank you! [/quote]

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