Reply to What were the benefits of going on hospice?

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[quote=Anonymous][quote=Anonymous][quote=Anonymous]My mom is in memory care.  When she was still cognizant she’d say the last thing in the world she’d want for herself is to be in a situation where she didn’t know what was going on around her.  And here we are.  I’ve struggled psychologically with her care- do I prolong her horrible quality of life by continuing to have them administer her heart, cholesterol and blood pressure drugs?  Or do I cease these and let the chips fall where they may?

A few months ago she’d taken a turn and the facility called me to tell me, and asked if I wanted them to call an ambulance.  What I didn’t realize they were asking was if it was worth it to treat her.  I opted to have them call, my mom had sepsis and would have met her end that way if we hadn’t intervened.  I still struggle if I made the right choice.  I love her and want the best for her.  It’s so hard to be responsible for decisions that literally impact whether another person will live or die.[/quote]

It is so hard.  We went the other way.  Chose hospice for my Dad who had sepsis and also had Parkinsons.  He lived for about 7 days with no food or liquid.  Could he have survived?  I don't know.  I do know his Parkinsons would mean he would never have a quality of life.  I am not quite at peace with it though.[/quote]

Find your peace knowing you did the best you can.  End stages Parkinsons is miserable.  You made the right decision.  He would not have had quality of life living with Parkinsons and a memory care unit where he got minimal care.  My MIL had severe early onset dementia (so died in her early 70's from it) and she suffered from 8 years with it.  She also lasted about a week at the end.  It was a blessing for her to pass, though we still miss her, because she had no quality of life and was suffering.  She didn't deserve to live like that.  I hope to drop dead.[/quote]

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