Reply to Neurologist recommending anti-seizure meds with no actual seizure yet?

Forum Index » Kids With Special Needs and Disabilities

Reply to "Neurologist recommending anti-seizure meds with no actual seizure yet?"

Subject:

Emoticons





More smilies

Text Color: Font: Close Marks

[quote=Anonymous]We went to Dr. Schreiber at children’s at the Fairfax location for our child with benign Rolandic epilepsy. Our child started having some weird symptoms during sleep. They said their face would feel numb or things would look funny or they couldn’t “talk”. Then one night we happened to be sleeping in the same room, and my child had a seizure in their sleep. At the hospital we leaned They also were having almost constant activity like you’re describing and eventually was put on Keppra. They may mention ESES, which is a condition in which your child’s brain is spiking so much that they’re not able to develop as well academically, physically, etc. because their brain literally has no time to rest. That’s an over simplified explanation, but the Keppra helps with this kind of epilepsy. Our neurologist had us do a baseline neurological evaluation so we can monitor if anything regressed with regard to their academics or physical Behavior, etc.

we were on Keppra for about four years and happy to say with our child’s form of epilepsy, which only happened in their sleep, they grew out of it by puberty. SUDEP is not something to mess around with. (this is how Cameron Boyce, the Disney actor from descendants died in his sleep).  I recommend you looking at monitors for at night , so you can pick up on any seizures during sleep. The one we used is called SAMI. Gave us peace of mind! [/quote]

Options

	Disable HTML in this message
	Disable BB Code in this message
	Disable smilies in this message

Review message

Search Recent Topics Hottest Topics