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[quote=Anonymous][quote=Anonymous]We are about to get DD tested because she has been diagnosed with hEDS and it's important to rule out the less common forms of EDS. But the geneticist is also looking to see if there are any genes associated with autism. It won't change her (autism-related) interventions. I'm curious, but I wouldn't do it just for the autism.[/quote]

My 24 yo DD is ASD level 1, has ADHD, and plans to see a geneticist to (hopefully) identify if she has EDS and if she does what sub-type. Her rheumatologist gave her a verbal dx based on her hypermobility, chronic pain, falls, bruising, and fatigue. She went to a cardiologist who did not think she has POTS. Her symptoms of EDS have worsened as she has gotten older, and I worry about her mobility and QOL in the future. She's smart, excelled in college, and has job she enjoys. But at the end of the day she is absolutely exhausted and falls asleep by 7. She lives at home, pays rent, and I am 100% supportive of her advocating for a correct dx and proper treatment. It's really hard to see my beautiful, smart, kind, funny dd suffer, and not be physically able to do the things she wants to do. [/quote]

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