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Kids With Special Needs and Disabilities
Reply to "Could you nurse your special needs child?"
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[quote=Anonymous]Hi everyone. This is OP again. 16:43, thanks for your concern and kind words, and thanks everyone else for your thoughts. DS is now 14 weeks and doing quite well. Just this week he seems to have "woken up" a bit and is more interested in looking at us and smiling, grabbing for toys, etc. That, of course, makes me feel much happier about things! We saw a ped GI and were prescribed Prevacid, but he got really, really upset on it -- maybe from gas. I felt that it wasn't helping him at all and was making him just as upset if not more, so I took him off everything, and he is doing just fine. The reflux is still there but seems to be getting better than it was. He still seems quiet to me but is cooing (albeit not a lot), and the low tone is still making his head a little wobbly, but he is still doing very well in terms of milestones, so I feel positive about that. The nursing is still not working, and with his "freak out" week last week, I didn't even try the SNS. We met with the LC again at 12 weeks, and he did remarkably well with the SNS -- staying very engaged on the breast and drinking well. I'm not sure that will ever translate into BFing well without it, but it was encouraging. I'm hoping to try again with the SNS this weekend and am hopeful it may lead somewhere. If not, I'll try to EP as much as possible, but I'm not sure I can do it for as long as I would ideally like to give him breast milk. I also contacted EI and will have someone evaluate him, but I suspect there won't be much they'll be able to say at this point. He is probably a little behind on motor skills, but it's pretty minor. Nonetheless, I think it may make me feel a little better. The OT has been helpful, and we'll see how things go in the future -- I might consider stopping seeing her if it isn't useful in the coming month. [/quote]
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