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Kids With Special Needs and Disabilities
Reply to "New autism diagnosis"
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[quote=Anonymous]Thank you for the post - unfortunately, as soon as we heard there was repetitive speech, I slowly stopped communicating in my native language with our DS. DS was DX at 3 with ASD (Level 1) and I was devastated, paralyzed by fear for SEVERAL months. Before the server shut down last Friday, I wrote a long post about this which was deleted, but I think the original PP read what I wrote and the need to just take things step by step. We're only a year into this DX and no I have not accepted it, my husband has, but I have not. We have not discussed it with anyone except his school and grandparents only who really blow if off like it's no big deal, which is sometimes helpful, but then not at all. I keep reading from the threads about getting things "confirmed" and having another DX done at some point - it was recommended for us before Kindergarten. The whole DX came as a big shock to us - for a long time we thought it was just a speech delay and that multiple languages were the culprit, but given the lack of sleep issues and SOME, very minor repetitive behavior, his pedi recommended a developmental assessment which I never in my mind EVER thought could be ASD - there were no glaring signs beforehand. Unfortunately (or fortunately), in the past year I have stuck to English and wrote a long post about this in a separate thread a month or two ago about the guilt I feel, severe guilt that I'm working through. It also doesn't help that my husband doesn't speak my native language so that makes things a bit tricky because our priorities are different - in any event, yes the research shows that there's no issue with more languages and ASD but it all comes down to how you want to raise your child and how you prioritize the needs because every ASD kiddo is different. Also their needs change. As our DS approaches - he has made MAJOR strides with early intervention with intensive speech 2-3x a week and some OT and some ABA (3 hours a week) - which isn't as bad as people make it seem especially for young kiddos which is essentially floor time/play based social building if you have a good BCBA. Personally, I know my DS can handle multiple languages but the issue has become that do we want him to be socially behind and having an even harder time communicating at least in one language first...it's tough[/quote]
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