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General Parenting Discussion
Reply to "I am so grateful my kids are healthy and alive! "
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[quote=Anonymous]There is also an entirely different perspective from some parents of kids with really profound disabilities. I am one of those. My child will end up in a facility with 24/7 care where I have no way to keep her safe and she cannot tell me if something happens to her. Parents like me often don’t want our kids to outlive us. Our worst nightmare is that our children live to be 85 years old in a Medicaid funded facility. Of course, I want her to live as long as she can while I can do all in my power to keep her safe. My other kid had cancer so I’ve had to contemplate what life looks like without a kid (she is fine now and more than 5 years post chemo). The reality is that my hsuband and I would have gone on in order to take care of our child with profound special needs. It isn’t magic. You just have to do it.[/quote]
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