Reply to Fetal Echo - IVF - Abnormal finding after normal anatomy scan

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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]Op again. Thank you for that very helpful post. Therapy is a very good idea and I will find someone soon. We had been thinking about Children's here or Philly already, but are also trying to remain positive. It's such a balance between trying to put positive intentions into the world and preparing for the worst. [/quote]

Children’s has the #1 NICU in the country and is a top 5 or 10 Children’s hospital overall (depending on the year; hovers around 5-6). Don’t go chasing a marginally bigger name and put yourself away from your home, you support system, etc. If you actually end up need advanced care over a period of time, you’ll be very glad you’re at home; if you don’t, you’ll be very glad you’re at home. Seriously. I’d advise differently if you lived in podunk, but Children’s is amazing… especially its NICU.[/quote]

OP should research pediatric cardiology programs, not NICU especially if it turns out to be some major problem. The more serious emergency type cardiac cases are usually in the NICU only a few days max before having surgery then recover in the PICU or a dedicated pediatric cardiology unit in most hospitals. Something less severe could be managed indefinitely in the NICU before eventual surgery or even discharge home, but a good portion of the care is still coming from a pediatric cardiology team in coordination with the NICU team. That being said, most cardiac problems aren't severe emergencies and I wouldn't suggest considering leaving the area for a top 5/10 program unless after repeated scans, it was expected to be such. Good luck OP.

-former NICU nurse[/quote]

Op here. Thank you so much for this information. I didnt know where to focus tbh. We will zero in on the peds cardiac programs to be prepared should we end up with something on the more severe end of outcomes. [/quote]

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