Reply to Stage IV Metastatic Breast Cancer Diagnosis

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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]I am sorry for what you’re going through.

I would not fret too much about the missed mammograms. One of the controversies about mammograms is that they often DON’T show the most aggressive breast cancers (MBC). [/quote]

I have another data point to share, my aunt had had a "clean" mammogram six months before her breast cancer was discovered.  She found a lump herself.  [/quote]

Second data point (NP here).  I had seven years of mammograms, all of which were clean.  My BC was found during another exam after I had swelling under my arm.  Not all BC presents as a lump.  Ten percent of all BCs are invasive lobular carcinoma (LC) and are not "lumpy", they are spread like a spiderweb and one of the hardest kinds of BC to detect.  What mammograms typically don't show are the lobular BCs, and it's not because they're aggressive or non-aggressive but rather how the cells aggregate (thus harder to find).

We've spent some much money on pink ribbons, socks, and awareness campaigns and telling people to look for lumps.  I always wonder how many people walk around with ILC for years and go undetected.  My doctor told me mine was probably there for 6-8 years.[/quote]

PP here and missed the opportunity to say to the OP that I wish nothing but strength and comfort to your sister and family right now.  The other PPs above are right...there is so much happening in BC research right now that what BC looks like today is probably a world away from what it will look like in 2-3 years even.  Don't give up hope.[/quote]

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