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Reply to "Feel like the walls are closing in quickly"
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[quote=Anonymous]6:32, Thanks so much for your kind words and the hug:) Unfortunately, we are still searching for answers and trying to get to the root cause(s) of my son's conditions. He did test positive for Lyme and he does have Tourette's, however he also has had the herpes virus in his system since age 3, which manifested as blisters on the bottom of one foot. I know, really, really odd! I never knew you could get herpes on the bottom of your feet and I took him to 3 dermatologists who all insisted it was eczema. I just knew somehow it was herpes and insisted they take a culture and sure enough, it was. Anyway, all 3 of these things (Lyme, herpes, and Tourette's) can affect the body and mind in a myriad of ways. What is driving us (and the doctors) all crazy is there's simply no way to know what is causing what, which makes treatment extremely difficult. Our next stop is going to a psychiatrist in New Jersey who specializes in neuropsychiatric Lyme. I think the post you're referring to was when he was having these "narcolepsy" episodes, falling into walls, etc. There is still an outside chance (which we hope is NOT the case) that he may have started the onset of narcolepsy. Typical onset is 15, which is exactly his age and there are other factors that point to it, however there are many factors that do not. With his Tourette's, his tics are constantly changing from one thing to another and the most recent one, for the past few weeks, is a high-pitched screeching tic. It is so high-pitched and loud that it's starting to cause ringing in his ears! Thankfully, he's able to suppress his tics at school and in public (by his choice) but suppressing them takes a tremendous amount of energy and concentration so it totally zaps him, and they eventually have to come out so he tics like crazy once he gets home. To meet him and spend any time with him, you would never have a clue that he has any of these conditions because he is an expert at masking everything. Sorry for the VERY long answer to your short question, guess I just needed to get some of this out. [/quote]
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