Reply to 20 wk ultrasound shows one working kidney...and it has issues

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[quote=Anonymous][quote=Anonymous]This was my thread. I wanted to revisit this in case anyone happens upon the thread searching for multicystic dyslastic kidney (MCDK).

Thank you so much to everyone who reassured me at the time that things would be okay.

I had the baby in May and she is healthy and beautiful. She had an ultrasound shortly after birth, which indeed showed a nonfunctional, multicystic kidney. The other kidney that had appeared to have a duplicated collecting system on the ultrasound was actually normal. It was just a misdiagnosis on that side.

Baby had more imaging (VCUG and renogram) at 4 months and will have a third ultrasound before she is 1 year. In her second year, she will have 2 ultrasounds, and one per year after that. The prognosis is very good. The main thing with MCDK is keeping the good kidney healthy, which means protecting it from urine reflux. If the cystic kidney starts to cause problems, we can have it removed, but it is most likely that it will involute (shrink up and go away) on its own during her childhood.

At this point, her good kidney has compensated and grown large and is doing most of the work of 2 normal kidneys.

I remember how scared I was after the 20 week ultrasound so I really wanted to share this story in case anyone is in the same situation. Our baby is so perfect and just the light of our lives. I rarely think about her kidney issue unless we are discussing it with the doctor.[/quote]

So glad it all turned out well. I realize yours was an old post, but in case anyone searches for duplicated collecting system later, I had a daughter who was born with that on both sides. She was diagnosed during pregnancy, and she also had an ASD (a hole between the top chambers of the heart). She was tested for several other abnormalities to see if she would fit a VACTERL diagnosis, but those were the two things found, in addition to a dual vessel cord.

It was so stressful and terrifying to not know how all of this would impact her life. Luckily for us, her ASD closed on its own. Her kidneys were fine, but her ureters had to be reimplanted into the bladder. That was a pretty quick surgery and recovery when she was 3 and she has follow ups for 2 years and now doesn’t need them anymore. [/quote]

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