Reply to 82 yr old making hand gestures while sleeping. Rapid Decline.

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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]On hospice, medical care is stopped. I speak from going through this three times.

If your dad has myelodysplastic syndrome and did not get blood transfusions, then it is not good. My relative died from it.

[/quote]

OP here.

At this point, the MDS is not what's going to kill him.  It will be his kidneys and heart (he has amyloidosis).  We believe his kidneys are declining quickly as he has started to become aggressive and very angry.   It seemed to happen "just like that", if you get what I mean.  From the time he was released from the hospital up until this past Friday morning, he has been completely calm, and at peace.  Conversive, and a joy to be around.  By Friday afternoon it was like a black cloud moved in over him. He is spewing so much venom and anger towards my mom and siblings, its honestly so hard to hear.  He was always such a kind and gentle person  :cry:

This really sucks.[/quote]
Call his doctor. They can give him some meds to help with the anger and depression.  It sounds like he really needs it.  Don't let this be the way he goes out.[/quote]

Thank you. I just spoke with my mom - she placed a call to the hospice doctor about an hour ago and they have just delivered the replacement medication.

[/quote]
Oh, I'm very glad to hear that.  I've been compulsively checking to see if you responded.  Thank you for posting.  Hugs to you and your family.  I know this is hard.  I hope the change in meds makes it easier for all of you.  Most importantly your dad deserves to have some peace and comfort, not pain and anger.[/quote]

Thank you PP - I really appreciate your post.  The replacement medication seemed to help - he is much more calm this morning. He's also having a lot of "conversations" with people who have already passed. His mom specifically, and also a cousin who passed about 10 years ago.  :cry: [/quote]

It is so hard, I know.  BTDB.  On the other hand, look at what you have done to make this transition easier for your dad.  He will never be able to thank you because he doesn't even realize it but you are such a blessing to him right now when he needs your help most.  Think how proud he would be of you and take comfort in that.  Hugs.[/quote]

OP here. yes, when he was in ICU he expressed how proud he was of all of us (his 3 children), and how much he loved my mom.  And that means the world to us, it truly does.  We have so much respect for him, and also for my mom.  Their life story is truly an incredibly impressive one.  [/quote]

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