Reply to Wall Street Journal: The Autism Diagnosis That Isn’t Always Permanent

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Reply to "Wall Street Journal: The Autism Diagnosis That Isn’t Always Permanent"

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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]Exactly-heard of many parents doctor-shopping FOR an ASD diagnosis, not the other way around.[/quote]

Can you point us to the data of children who were diagnosed as NOT having ASD but later turned out to have ASD and so missed years of therapy?[/quote]

I don't have data, but anecdotes.  My guess is that most of these kids were still given significant supports, and did not actually miss years of therapy.  The kind of ASD that actually benefits from intensive ABA is not likely to be missed.  False negatives would be more likely to be Asbergers/HFA.  Generally if parents are concerned enough to get an ASD evaluation, they're still going to get some services even without the diagnosis.  This is especially true since younger kids can qualify for the Developmental Delay label for IEPs.  My kid may or may not have ASD but he has gotten pretty much the same sorts of services anyway for the past 3 years.  [/quote]

Agree, regardless of the diagnosis and even before we could get in, we started speech services knowing child's speech was behind at age 2.  We weren't going to wait for a doctor or someone else to tell us and our child never got services early on through the public system as we private paid and used insurance so how are like that even tracked.  I know multiple families who got fed up with public school services and went private directly.

You have a huge range of families from some who get their kids services too late, some of us who start very early to some who for what ever reason choose not to.

I can see how families choose not to early on.  Our first evaluation at Children's said my child was fine and they'd catch up on their own and didn't need services.  I knew better and private paid services and got better evaluations.  But, I can see a family saying hey, Children's said XXX and waiting.[/quote]

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