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[quote=Anonymous]OP, I had a similar issue come up with a food allergy with one of my three children and my mother not taking it seriously, even to the point of not wanting to carry his epi-pen when she took him somewhere. I stopped trusting her to carry that, let alone inject it in an emergency so I stopped letting her take him places. I lost it once and actually screamed at the top of my lungs at my mother about how my child will probably have to carry the epi for the rest of his life, and now i believe she takes things more seriously, but he is old enough now to start carrying it himself as well. The combination of yelling at her, educating her more, and restricting access to him for his personal safety, did the trick with her, but I lost almost all respect I had for her at that time. She is also getting older and losing her filter.

It's really hard to educate people about certain illnesses.

I thought the poster who gives the advice quoted below advice was good, until I realized it was really conflicting. How do you both educate someone close to you about a life-threatening issue and yet simlutaneously stop expecting things from them? It's hard, especially if they see your children a lot.

[quote]
1) That is a lot more information than you gave in your initial post. When you don't give full information but expect people to act as if they had full information, you're setting them up to let you down in their response, and that's not fair to them. I realize your parents may have had more of this information already than we had, but it's something to think about. 
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[quote]
3) You know your parents have a history of minimizing your feelings and experiences, so stop expecting anything else from them. They are not the people to turn to for support when you go through a stressful episode with your kid. Since the evaluation came back fine, I probably wouldn't have mentioned it to them at all, and definitely not with the expectation of the sympathy and support you were looking for.[/quote]

I think this is good advice and while I think this person is probably advocating still telling them about these issues without expecting support, it's almost impossible in practice, at least in my experience. We all expect something from our parents. Just saying "don't expect anything else from them" is not realistic.

What I do now is have my husband communicate with them about these types of issues because he is less emotional about it. 
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