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Kids With Special Needs and Disabilities
Reply to "Gettnig evaluated for PANDAS/PANS"
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[quote=Anonymous][quote=Anonymous]There is one poster here who dismisses the entire notion of PANDAS. As I recall, her child was misdiagnosed with it. However, apart from Hopkins, there is pretty widespread acceptance of PANDAS. Harvard, NYU, Yale, Duke, and Stanford, not to mention the NIH, all have specialized practices for this. It could well be the case that many children are misdiagnosed with it. However, if your child has PANDAS, it is devastating. Pediatricians and non-specialized doctors are pretty helpless in addressing it. My child has PANDAS and I have every reason to believe that is the correct diagnosis. His is a very classic case and he was diagnosed at the NIH. Moreover, we have a strong family history of rheumatic fever, an illness that is very closely related. There is also a family history of other autoimmune disorders for which studies have shown have a high association with PANDAS.[/quote] +1. I concur. We also see Dr. T and drive from VA.[/quote]
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