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Reply to "Human Growth Hormone Deficiency"
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[quote=Anonymous]Both my kids were treated for Growth Hormone Deficiency. For my oldest, it seemed the right course. For my youngest, I had concerns as her blood levels (IGF-1) were quite high and the Dr. was not monitoring properly. She is 17 now, and her hands are very large for her size. I am concerned that Dr did not manage her dosage properly. My advice would be to get multiple opinions. and if you do proceed with GH treatment, make sure you see the lab work yourself. That was my big mistake. I trusted the MD was making sure IGF-1 levels were normal and she wasn't. She would just tell me everything was ok and I didn't question her until it was too late. Also, you may want to talk to the Magic Foundation, a nonprofit to help parents navigate these issues. I wouldn't trust them 100% as they are funded by drug companies, and their panel of experts has a vested interest in this stuff. But it might help you sort things out.[/quote]
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