Reply to Human Growth Hormone Deficiency

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[quote=Anonymous][quote=Anonymous]OP here. I really appreciate all the advice and experiences. DD’s endo says she in the 3rd percentile in height and less than 1st percentile in weight. Her bone age is 2.1 years delayed. A complicating factor is that constitutional growth delay runs in DH’s family which can explain the low hormone levels too. Unfortunately by the time one is confident in that diagnosis (e.g DD gets her period at age 16), it’s too late to intervene. Studies I’ve read show that medicating an otherwise healthy child is not advised and can have long term consequences (higher risk of cancer and stroke) not found in kids who are truly HGH deficient. We are not sure yet where DD fits. Some doctors and parents are uncomfortable with the wait-and-see approach in cases like ours. Others are more conservative. I don’t think either is wrong. It’s a tough decision and feels like we are playing blackjack with our daughter’s future. That’s why I’m gathering lots of opinions, processing, and anxious to learn more from experts who can guide us.

[b]BTW, DD loves being small and mighty. She’s confident and happy in her skin.[/b][/quote]

I don't think you can go by this. This would likely change in a few years when she realizes that she needs a cushion and pedal extenders to drive (to say nothing of having to pull the seat right on top of the airbag), is still shopping in the children's department at 20, is having to climb shelves or ask others for help just to do grocery shopping, has her face at everyone else's armpit/butt level on public transit, and is dating men 2 feet taller who put their foot in their mouths and awkwardly ask her if she has a genetic disorder that could impact their kids. Being petite is one thing, being able to be classified as a dwarf is quite another. The world is not friendly for adults who are 4'3". Unfortunate, but true.[/quote]

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