Reply to 18 y.o. DD's mysterious brain ailment, advice please

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[quote=Anonymous][quote=Anonymous]What you are describing sounds a lot like autoimmune encephalitis, which is basically when a person's immune system attacks the brain. Symptoms usually begin after an illness of some kind. It can come on quickly and dramatically (changes in behavior, seizures, hallucinations) or take months or even years to progress. It's only been recently "discovered" so most doctors know very little about it. Go here for more info:

https://aealliance.org

And here for doctors in your area.
https://aealliance.org/clinicians/

It needs to be treated quickly (usually high dose steroids are first line treatment). The sooner you start treatment, the better the outcomes. [/quote]

OP here.
No, DDs symptoms sound nothing like the symptoms described in that link you posted.

But, what's similar, I think, is that something, a virus or some other infection, attacked her brain.

The infectious disease specialist told us we'd never know what attacked her brain. And her symptoms are very subtle. She appears totally normal. DH and I are the only ones who notice that something's different about DD.

I am wondering whether steroids might help DD??

A friend had a mysterious ailment that landed him in the hospital with severe symptoms (confusion, difficulty walking). His doctors thought it was meningitis, but tests were negative. They finally gave him steroids, and he recovered. His doctors still don't know what caused his illness.

I wonder if DD had a milder version of something like that?? [/quote]

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