Reply to Genetic Testing- do it or not do it?

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[quote=Anonymous][quote=Anonymous][quote=Anonymous]OP -- your child is young and you are at the start of this. Some kids with this diagnosis tackle it and have a super functional life. For others, it is a symptom of a larger problem. I hope you fall in the former category but looking back I would have liked to known earlier that it is a symptom[/quote]

+1 my son was diagnosed w suspected apraxia by the SLP at 2 and confirmed at 3. It was global and the OT used the term dyspraxia. So did the developmental pediatrician. The neuro ordered genetic testing but it didn't find anything. However that was 7 years ago and so many new genes have been identified. We threw every possible resource at our son and it paid off. He attended speech therapy multiple days a week for years (at one point 4-5 sessions a week). He also did OT privately. I sat in every therapy session I could and repeated what the therapists did at home between sessions. We are fortunate. He was able to attend mainstream K and was finished with speech and OT by the summer after 1st grade. At 9, he is actually quite coordinated and his speech is clear, but he does have minor issues if he is tired or sick. The only lingering problem is he has slow processing speed. [/quote]

This is great to read! So glad things are going well. I am doing the same with therapies and will hope for a similar outcome. We shall see.[/quote]

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