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Kids With Special Needs and Disabilities
Reply to "Feeling sad and sick to my stomach. "
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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]PP here. For God's sake, OP. I thought you'd already seen a developmental pediatrician. Your kid isn't as unique as you think. Go to Children's or KKI. Dancing around the issue isn't going to help him or you. It sounds like you're putting it off b/c you're trying to avoid a diagnosis. In the end, it's the pretty much the same therapies--OT, ST, social skills groups, maybe meds. You will get a thorough evaluation at KKI or Children's for either a neuropsych or developmental pediatrician.[/quote] Did you even read her post? They have an ADHD diagnosis. [/quote] I did but I wonder how long ago that she saw a developmental pediatrician. I don't understand the hemming and hawing about additional testing. She wants "affordable" then go with insurance through KKI or Childrens.[/quote] Her post is very unclear. It sounds like they are under some kind of care for the ADHD. They are doing a trial of medications for that. Anything they have been experiencing can potentially be explained by ADHD. But she is really worried about her son has cognitive issues. [/quote] Exactly, and that is why to go. He can confirm or deny ADHD but he cannot medicate. He can take a look at the cognitive concerns and see if past language issues play a part in it. That is why someone who is very skilled at nonverbal is best in case language is impacting it. He will take the time to look at everything including observing behaviors. He pointed out stuff we knew (more interesting, good) that my kid was doing that other evaluators never picked up on. He is good at not only testing but looking at the actual child during testing as part of the testing. It is not just lets sit in a chair and anwser questions. He'll even get on the floor, play and do all kids of things to get kids to cooperate. He brought out my child's personality very quickly. [b]I though he might be a quack, for lack of better terms, like others here. He isn't anything like some think he is. He is good for getting the one time questions answered and guidance especially for younger kids. I had my reservations before going, but like OP and most who go, her title is why we go. You are very worried. She sound she like she has be to several specialists and child is in services and still not sure. That is when you go. At 6-7, then you do the neuro evaluation recommended on here[/b]. [/quote] If you are sick with worry, the Camaratas are a good place to go for very young kids. They have so much professional and personal experience working with the special needs population and in testing. I first took my son when he was 5 to Dr. Camarata. We'd been to multiple specialists and no one could really tell us what was going on. My child has an unusual profile that doesn't fit any any diagnostic box easily. Dr. Camarata had a much better read on my child extremely quickly. He told me things about my child that were true, and that I had never told anyone. He also filled me in on a great deal that I didn't understand about my own child, and that none of those "professionals" actually told us. Our lives were better immediately thanks to his coaching about how to work with our son, and how to address his school needs. My son's receptive disability turned out to be longer lasting and more serious that Dr. Camarata originally hoped (we've seen him several times) but his understanding of various testing and his willingness to spend hours with us on the testing details and results and hours with my son getting to know him has made a huge difference in our son's life. We recently let the school district do nonverbal IQ testing with our child -- we'd always insisted they used Dr. Camarata's testing results showing my child had an average score, and they were always skeptical. Well, turns out the school was right to be skeptical about Dr. Camarata's IQ testing, I guess: My son's nonverbal IQ and reasoning skills test scores were actually even higher than Dr. Camarata's testing showed. It was a delicious moment, going over those excellent results with district officials who have always tried to marginalize my son and de-legitimize Dr. Camarata's expertise. I never would have had the courage to fight so hard on my child's behalf without Dr. Camarata's steadfast belief in my child's potential. [/quote]
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