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[quote=Anonymous][quote=Anonymous][quote=Anonymous]

Thank you PP.  How much has your son gained?

Did you work with a ped. endocrinologist or gastrologist (sp).[/quote]

20 lbs in almost 9 months. They actually said some kids gain as much as a pound a week, but he hasn't quite managed that. We'll take it though.  Still only in the 4-5% for BMI but this is a huge improvement from the .1% where he started.  Also have seen some decent height growth (a couple of inches, and there was maybe 1/8 inch total in the preceding two years).  Now 13, he is finally in size 10 jeans and outgrew some shoes.  He was and is still seen by both endocrine and GI. (Along the way, we've also seen genetics, immunology (because of recurrent illness), pulmonology (ditto on recurrent illness), and nutrition countless times.) It was endocrine who first suggested a tube. By the time GI brought it up some months later, we'd had time to get past our initial reaction of "we're nowhere near that!" and "ridiculous!" Still seeing endocrine because growth trajectory remains a question. GI did the tube and manages calorie increases, etc. They talk to each other and team manage.[/quote]

It sounds like you have a cooperative team. Would you mind sharing whether they are part of a hospital system like Children’s or Georgetown?[/quote]

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