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[quote=Anonymous][quote=Anonymous][quote=Anonymous]OP, I really don't understand your latest post, specifically the statement that all the many doctors and specialists you've seen in the past year have told you that your DD is fine and just a late bloomer.

That's completely at odds with previous statements you've made on this thread, for example on page 2: "Her team at NIH concluded that her bone delay is most likely a result of “insufficient caloric intake." It's also contradicted by the very conversation that precipitated your original post, the suggestion by her dietician who is part of her medical team at Childrens' that you may need to consider a feeding tube.

So which is the correct version -- a fine late bloomer or a child whose growth is significantly delayed by insufficient nutrients? [/quote]

DP.  I read that post as saying that she has received conflicting opinions from various doctors.  There have also been conflicting opinions in this thread.  It's hard enough parenting when you know what the right thing to do is, it's even harder when you don't know what the right thing to do is.  [/quote]

OP here. Thank you. You've hit the nail on the head. If it seems confusing and overwhelming, imagine how it feels to us.

Yes, we've received conflicting advice, even from the same specialists (e.g. the dietician who told us to relax about eating three months ago, then suggested a feeding tube last week, then said to try supplements instead five minutes later). Even she didn't recommend limiting activity. Her endos weren't overly concerned about her growth, maybe because they see small children all the time, and suggested we follow up with a ped GI and nutritionist. They couldn't say which was a greater factor, genetics or nutrition. Her ped GI ruled out underlying illness and referred us to a dietician and therapist for anxiety. Her therapist is not concerned about eating disorders and does not recommend medication. Her primary care physician has never been concerned. My husband is satisfied we have excellent doctors all telling us she is fine, except a dietician who has contradicted herself. He believes we are causing her anxiety with all this testing and stress. He may be right, but how can we know we are doing the right thing? What if we miss something? What if we choose the wrong approach? Are we in denial or trying to make sense of the advice we've been given?

Today I will meet with a new pediatrician who hopefully can guide us. Someone needs to steer this ship, or at least coordinate her care. DD is angry I'm dragging her to yet another doctor. DH is angry we are paying out of pocket for a doc who doesn't take our insurance. And once again, I'm doubting myself, but doing my best to focus on food and fun. Those are the only things I know for certain we need right now.[/quote]

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