Reply to Leucovorin now approved by FDA--will providers prescribe to ASD kids?

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Reply to "Leucovorin now approved by FDA--will providers prescribe to ASD kids?"

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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]We live in NW but go to an autism specialist who actually has authored many studies on Leucovorin and autism. Look up drs Frye and Rossignol. They have data going back years. My dd has been on it for 5 years. They don’t put all of their patients on it. You need to do a FRAT test first to see if you have antibodies, etc. I hate that now everyone is jumping on board, regardless of if it will be effective. It’s not going to be effective for a large percentage of autism patients who don’t have a positive on the FRAT test. [/quote]

It hasn't been widely studied, but folate receptor autoantibodies seem to have high prevalence in kids with autism-- perhaps as high as 75%.

But it is pretty incestuous research- basically all going back to Frye. That's suspicious. Either it is an incredibly interesting research that much of the medical community has been largely ignoring for unknown reasons, they're cooking the numbers somehow.[/quote]
Not really that odd for researchers to specialize in a certain area. [/quote]

It is odd for other researchers to not pick up promising research areas from
others.[/quote]

You know what actually would have been great for RFK Jr to do? Announce an effort to assess which research efforts have the most potential and deserve the most federal funding. The search for genetic causes has taken up too much bandwidth - perhaps it is time to move on from that. perhaps it is time to focus less on the search for causes and more on effective therapies and treatments. Or perhaps it is time to redefine the categories so scientists can search for the causes of the more disabling forms of autism. But of course, this kind of effort would take time and resources and not allow brainworm to pretend like he alone was conquering the evil FDA. [/quote]

You trust a centralized effort to do that more than distributed grant proposal reviews by subject matter experts?[/quote]

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