Reply to Leucovorin now approved by FDA--will providers prescribe to ASD kids?

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Reply to "Leucovorin now approved by FDA--will providers prescribe to ASD kids?"

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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]I'm really reticent to jump into this thread because it has turned so political and hostile, but I am surprised no one has mentioned Dr. Rosario Trifiletti in NJ.  We came across his name on this board for PANS/PANDAS but he has spoken on the use of leucovorin for autism.[/quote]

Due to the political angle, the thread drew a lot of attention from people without non-verbal kids. The reaction would have been completely different if Trump and RFK hadn't been involved in the press event.[/quote]

The political angle IS the angle. And of course this is being touted for all kids with autism not just non-verbal kids. It’s not like it was some accident that Trumps and RFK Jr were involved. [/quote]

Your just as guilty of the binary thinking by taking the opposite extreme- that we should withhold it from kids impacted by profound disabilities.

Trump and RFK didn't make up the 20 years of data or the two double-blind RCTs that have already been done. We wouldn't be having this discussion if this was a cancer drug, but a lot people don't particularly care about kids with profound autism because they don't directly see the impact that it has.[/quote]

We wouldn’t be having this discussion about a cancer drug because Trump and RFK jr have not decided to upend and politicize cancer patients they way they have decided to do for autism. I think leucovorin and Tylenol should be studied and assessed using the NORMAL procedures already developed to ensure drugs are safe and effective. I think our kids deserve BETTER research not politicized publicity stunts. [/quote]

Other administrations likely wouldn't have the narcissistic personalities insisting on making it a political event, but there certainly would have been public and political pressure to facilitate use.

You see this in more extreme cases- people pressuring the FDA to open up drugs that *don't* have established safety records for compassionate use.[/quote]

They did a lot more here than compassionate use (which is generally on an individual level and a last ditch effort when the person is dying). Totally different from rushing a med for otherwise physically healthy *children*. [/quote]

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