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[quote=Anonymous][quote=Anonymous]OMG everyone needs to lay off PP and acting like she must immobilize and force-feed her child cheeseburgers or else.  I am pretty attuned to people's writing styles that suggest they are pushing their eating issues onto their kids, and I see nothing at all of that in OP's statements.  All I see is that she  has rather disjointed care at Children's, without being given a good sense of plan A and plan B, and when this becomes a medical crisis that would necessitate a feeding tube.  (Which - is not surprising about Childrens.  Over on the special needs board you can talk to MANY parents who deal with issues at Childrens with coordination of care and administrative issues.)

The thing OP should do is beat down the DOCTOR'S door to figure out why things are so serious as to have the feeding tube on the table.  OP's original question was borne out of the confusion of the mixed messages she's getting from her DD's team. On the one hand -- keep going and come back in 3 months!  On the other hand -- we may have to do a feeding tube!  Those two things don't really match up.

If I were OP I'd also get a second opinion with respect to the eating disorder, at CHOP or in Boston or wherever the #1 eating disorder place is.  [/quote]

+1000 to all of this.  OP, I know you are not a troll and I also know you are worried and are doing your absolute best. Try not to internalize what the mean/harsh people are saying. I can only imagine how overwhelming all of this is.

I agree with the PP quoted above. I think you need a second opinion on the eating disorder and the team at Children's needs to communicate with you more clearly.

This is sort of off-topic, but after I had been put on bed rest and then hospitalized with very severe pre-eclampsia, once baby came home from the NICU, I realized that my doctors and nurses had floated a lot of things in a gentle way to prepare me for what was going to happen. Things like visit the NICU just in case, lots of questions about how fast my husband could make it to my bedside from overseas, etc. I realized later that they knew the whole time that they were going to deliver her at 32 weeks if we could make it that far, but they didn't tell me that outright. The feeding tube in three months might be a case of signaling it so you can get used to the idea.[/quote]

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