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[quote=Anonymous][quote=Anonymous]Heroin mom, I'm the one that asked about your son's illness. Thank you so much for your insight and advice!!! Our teen son was recently diagnosed with a chronic illness and is having unpredictable pain among other things which we are trying to deal with. Luckily his doctor is experienced with this aspect of the illness but I do worry. So far we are doing all we can without big pain killers just like you advise. He is not a complainer so it is hard sometimes to get him to give us a pain number.

I'm glad your son is doing well right now - it is obvious you have kept your wits and advocated for your DS. I'm also glad he found some good ways to treat his conditions and regain some quality of life while staying clean. [/quote]

Sorry to hear about your son.  Having such illnesses are hard even for adults, so you can imagine what it must be like for a teen! You are in a better position than we were because you have a diagnosis.  However, as we found out and as you know, that is only the first part of the struggle.  Sounds like your doctor is very clued in.

I will give you a view that may be controversial, and actually a bit hard for me as I am generally quite anti-opiate.  However, there are times when people with chronic pain get into a cycle that builds upon itself, and they need something to break that cycle.  Very selective, targeted use of a painkiller in this situation can actually help prevent people from resorting to opiates off the street (and believe me, all teens know how to do this or at least know someone who does) to break the pain cycle.

Sometimes tramadol is prescribed for this--it is a synthetic opiate but also has addictive properties.  For some people Tramadol does nothing, and something stronger like Percoset is needed.  You can probably get a prescription for Tramadol from your doctor or a prescription for ONE Percoset for break glass in an emergency situation.  In either case, you should have total control at all times of the medication.

Also, I have heard very good things about Children's pain management program if it is at all possible for you to get in there.[/quote]

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