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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]OP - does your baby suckle on anything?  Their hand/finger, a pacifier, anything at all?

I am just wildly impressed that the baby is gaining weight with syringe feeds - you are clearly working SO HARD.

If the baby is not sucking on anything I am, like other posters said, concerned about a tongue tie or some other structural mouth issue that has not been caught yet. [/quote]

OP here. He will breastfeed but can’t get a good latch because of small flat nipples. He will extract like 0.5 out when he does. We tried a nipple shield and he doesn’t like it and will refuse to use it. [b]He will suckle on my breast shallow for comfort[/b]. He won’t take a bottle but we are still trying. He will take a pacifier.

We make sure to feed him 1-2 ounces every 1-2 hours. Sometimes when he is really hungry he will suck on it to get the milk out as soon as we put the syringe in his mouth. Most times we go slowly and squirt it into his cheek. The feedings can take about 30 minutes. He eats 20-24 ounces a day. [/quote]

If he does this than the SNS could work. My daughter was like this and the SNS was a lifesaver for use. We used a DIY SNS systen with feeding tube and by varying the height of the bottle you can control how much effort he has to put in to get milk out. It’s a siphon system so at the beginning of deeds I had the bottle up high so basically got milk with shallow latch and disorganized suck. And lowered it later in the feed when I thought she was mainly comfort nursing. We saw an osteopath who did some bodywork on her and that made a big difference in her ability to suck effectively.  Pre SNS we did a lot of syringe feeding but stopped that when we got the SNS to work.

Good luck! I know it is so hard! [/quote]

OP here. I ordered one but it won’t get here until next week. [/quote]

As has been posted by other posters up thread - call your LC or ped and see about getting some NG tubes to use the same way you would use the SNS in the meantime. You can start today. [/quote]

The baby doesn’t need a feeding tube.[/quote]

Baby is feeding fine.  There is no need for a feeding tube.  She does need to call her ped and see a GI or feeding specialist or both.  An LC isn't going ot help at this point.[/quote]

DO YOU PEOPLE EVEN READ ANYTHING THAT DOES NOT DIRECTLY AGREE WITH WHATEVER YOU'RE HUNG UP ON?

*NOT ONE PERSON* on this thread has suggested that the baby needs nasogastric feeding. Not a single post has alluded to the fact that this baby is any danger and would need this kind of intervention. Everyone is encouraging seeing proper medical professionals, including a certified lactation consultant, who should be able to help with latching as well as use of an SNS (or NG tube in place of an SNS), and specialists to assess the infants mouth for ties or causes for weak sucking.

The tube that is used in NG feeding is a clear, flexible tube that does not selectively need to go in a nose just because that’s what it’s often used for. It is the perfect length and diameter to use as a DIY supplemental nursing system (SNS). One end of the tube goes in a bottle, one end is placed at the nipple. Baby sucks and gets milk/formula, whatever is in the bottle through the tube, as well as any milk that can be expressed from the breast. This helps develop more productive and deeper sucking because the baby is actually getting “results”, which they may not from an improper latch. The suckling also stimulates mom’s breasts to produce milk, let down, etc.

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OP has a lactation consultant, had order a SNS, and she plans to seek more help from the pediatrician. Her baby is gaining weight and doesn’t need a feeding tube. [/quote]

Well, the fact that OPs LC keeps pushing the nipple shield (which is not a cure all), has not offered a makeshift SNS, has not suggested she go to a paediatric dentist or maxillofacial surgeon, and is basically only giving OP the solution of “just keep trying” tells me she’s of limited use. Not all LCs are created equal, and many don’t have the skill set to dive deeper beyond the simplest and most common of issues; it sounds OP may need someone more qualified. She’s doing a great job (actually excellent job) and is committed to breastfeeding; now she needs to be supported by a team that can assist in that. BF can be fraught with all kinds of fears, doubt, and it’s darned hard work at the beginning, and it’s important to clear up problems as early as possible to help maintain supply and limit frustration that may lead the mother to quit BF.

The reason OP should look into getting the NG a tube sooner is it may afford her a whole week of easier BF before her SNE comes in. There’s a little bit of a learning curve to it too. Having it earlier helps infant by maintaining the sucking muscles and skills he hasn’t been able to master yet , and helps protect the mothers supply because milk is getting removed in a more natural fashion. Babies are more efficient at removing milk than pumps are.

She still has a bunch ahead of her, like solving the latch issue. Which is occurring with both bottles and breast. This could give her peace of mind faster, rather than requiring syringe or cup feeding (bet you didn’t know that could be done either, did you PP?) [/quote]

Wouldn’t an SLP or OT specializing in feeding be helpful too? This doesn’t sound run of the mill, so I’d also want a medical professional who knows about suck/swallow reflexes who works with higher needs kids. Not sure if there’s a feeding clinic OP can get access too … this seems to go beyond breastfeeding. [/quote]

Same poster. I would probably be seeking out professionals like this:

https://childrensnational.org/departments/center-for-neuroscience-and-behavioral-medicine/programs-and-services/hearing-and-speech/programs-and-services/feeding

https://www.medstarhealth.org/services/pediatric-feeding-therapy

https://www.aprilandersontherapy.com/
https://www.feedingmatters.org/providers/washington-pediatric-therapy/

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