Reply to Reminder about the purpose of the Kids with Special Needs Forum

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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]Thanks Jeff for all that you do.

I've been personally frustrated by a few people with agendas who always want to deny that conditions like PANDAS or Lyme are even real. My kid has had both and they are all too real, and the denial of them can be dangerous. I always try to respond to parents asking questions about these conditions, having been through them and having learned so much. But when I do I am almost always met with someone who wants to state definitively that these aren't real, which is not just counterproductive but personally invalidating and hurtful after all that we've been through.

I think that's what really gets to me - the invalidation of my own lived and painful experience. 
[/quote]

If you want to post about your personal experience, fine. But the way PANDAS and Lyme come up is that a parent says “is this PANDAS”? and people respond with the very real, very substantial questions about PANDAS and Lyme. Yes this could be done in a more or less derailing way.  But it’s not invalidating to you when someone comments to *someone else* about the serious issues surrounding those diagnoses. [/quote]

yup, here we do. I think we just found another one.[/quote]

go not do[/quote]

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