Reply to Husband has Sickle Cell gene and didn't tell me

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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]If he is black, this would have been discussed at some point with your health care team.

If he isn't black, but is from a middle east, mediterranean, south asian background, then he likely had family with the disease to have been tested himself.

[/quote]
OP here - He has African ancestry (15% according to his 23andMe). The remaining percentage is European.

His parents found out that he has the gene after routine newborn screening in the hospital when he was born.[/quote]

One person with the trait doesn't matter. Do you have it OP? If not, keep it moving. We are Black and my Mom and Sister have the trait. No one else.[/quote]
I have the trait and have had to be admitted to the hospital 15ish times in my life. My blood sickles when I’m not in optimal conditions. Right now is the worst time of the year for me because of the cold weather. Every single person with SCT can have this happen, but not all of us will. Our red blood cells are not the same as someone who doesn’t have the trait. Their red blood cells never sickle. Ours do. I believe they downplay how bad SCT can be because they want to reduce the stigma and do not want people to panic. It’s understandable, but I wish they’d listen to us.

https://healthunlocked.com/sicklecellsociety/posts/245584/crisis-but-only-sickle-cell-trait[/quote]

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