Reply to Leucovorin now approved by FDA--will providers prescribe to ASD kids?

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Reply to "Leucovorin now approved by FDA--will providers prescribe to ASD kids?"

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[quote=Anonymous]There are so many great stories about how leucovorin is changing lives. Here is one i found recently 
I rarely share in settings like this because my son is 31 and deserves his privacy. BUT…. I see so much misinformation, much of which is coming from seriously uninformed medical providers that really should know better! Seeing people struggle to access appropriate care is heartbreaking. Luecovorin is an incredibly effective treatment for many people with autism! This is not some kind of political ploy or newfangled approach. The research is real as are the long term, proven results.

MY SON STARTED TAKING LUECOVORIN 13 YEARS AGO. This is not a new off label use, it’s something that’s been safely and effectively used in the autism and Mito communities for over a decade!

Although my son is still considered Level 3, he barely meets the standard now. He has confirmed CFD and Mitochondrial myopathy and was diagnosed with ASD as a preschooler. Although not a cure, Leucovorin has been life changing for him! Not only has he had a significant decrease in behaviors including almost zero shrieking and a complete elimination of aggression but he is also far more verbal. His seizures are significantly reduced as well. Without his Leucovorin he would not be able to live the quality of life he does now. It’s been truly life changing for our entire family!

It is my opinion that all children should be tested for folate deficiency upon a diagnosis of autism and treated with prescription strength Luecovorin when appropriate. I truly believe there is more than one cause of autism but I also believe CFD is likely an undiagnosed cause for a significant number of people. That needs to and can change.

I pray this newly available knowledge brings true lasting change to the autism community. It’s much overdue![/quote]

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