Reply to Interesting new study about the 4 types of autism

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[quote=Anonymous][quote=Anonymous][quote=Anonymous][list][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]Show of hands as we are talking about the biology behind autism- how many here have sought out a FRAT test for their autistic family members?[/quote]

I am totally opposed to genetic testing that doesn’t have any benefit. so no, of course not. [/quote]

NP.  My kids have been diagnosed with a genetic syndrome that is associated with autism and they also have been diagnosed with autism.  Treating the genetic syndrome with prescription supplements and medication has really improved their autism.  There are no targeted gene therapies yet but they are working on it and it will happen soon, in the next couple years or decades.  Then other children like mine may be cured.[/quote]

Ok - but that is likely a completely different scenario than most people here, and possibly better conceptualized as a different diagnosis. Writ large there is absolutely zero reason to believe that there will be gene therapies for autism in the next couple of decades let alone years. [/quote]

Yeah, so let's just not research genetic links to autism. Must be a waste of time and also if we don't research them you'll be proven correct![/quote]

It is a waste of time and money. [/quote]
DP. I don’t think it’s a waste but it’s crazy how this seems to be the only avenue researchers are/are able to pursue.[/quote]

What do you think they should pursue?

The ABA industry is valued at billions of dollars paid for from insurance premiums and tax dollars every year, much from companies that coerce families into signing their kid up for 40 hours of treatment weekly delivered by people without college degrees who haven't even completed their RBT certification.  The cost of this research is nothing when put into perspective and I think understanding the biology behind autism is pretty important.[/quote]

They could research the effectiveness of ABA for one thing! or the impact of insurance coverage on ABA companies.

It’s pretty well known that the search for genetic roots of mental health/developmental conditions has been a red herring. [/quote]

The effectiveness of ABA has been thoroughly researched since at least the 1950s. Insurance coverage started in SC, go look it up yourself, tons of work involved fighting for this- only reason insurance companies granted coverage was BECAUSE of that research.

I will agree with you that insurance coverage has saturated the industry with inexperienced RBTs and pointless requirements. I don’t even take insurance because their asks were going against best practices for my clients.

So find someone that doesn’t take insurance if that’s your complaint, but the field of ABA and supporting research is sound. Stick to BCBA/LBA only providers and background check thoroughly their experience, education, and overall fit with your child’s needs. You can find the best provider but it might just not be a good fit- a good provider will tell you this, just keep looking. Be confident in your choice BEFORE they start working with your child. [/quote]

lol no. We need a lot more research into ABA and a lot less into the genetics. [/quote]

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