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Kids With Special Needs and Disabilities
Reply to "s/o please stop derailing/diagnosis lawyering/etc"
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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][b]I have a child who is severely disabled and has no diagnosis. [/b] She is 10 years old. You really have no idea what you are talking about. Many families wait years or never get a diagnosis. People are free to use whatever terms describe their situation -- especially since so many kids fall through the cracks. Stop expecting order where there isn't any. You sound like you have problems yourself.[/quote] Maybe you missed the posts, but the poster was a mom with older children who never had them evaluated. So you don't have a diagnosis is you never look either.[/quote] How do you know they've never been evaluated? If they are in speech therapy, in order at least for our insurance to pay, they have to be regularly evaluated. Not all kids need a neuropsych. We've never had one. Big deal. It isn't going to tell us anything more than the many other evaluations we have had.[/quote] That's what the mother said.[/quote] I am that mother! You misunderstood me. My older son has been evaluated by his pediatricians (several), ENT's, a half dozen SLP's, had a full scale WISC administered by a psychologist, and seen a neuroscientist who is an expert in apraxia. Everyone concluded that he seems to have low-ish time and multiple major articulation errors. All that and nobody knows why. So we focus on the what and thank God he is getting better with therapy and time. Same story to a lesser degree with ds2. [/quote] You realize that evaluations are a form of intervention? Also, you need a [b]full[/b] evaluation by a developmental pediatrician and/or a neuropsychological evaluation by a psychologist--not just the WISC. Every professional you mentioned has extremely limited scope. My guess is that you're trying to avoid a diagnosis. [/quote] ...why? If the therapy is working they aren't going to change it. The children are making progress in their identified needs and have had more than enough testing. I've provided therapy and evaluations for hundreds of children beyond age 5 with speech and language needs who have not received, nor needed, a full neuropsych because they had no needs in other areas. Because an SLP is the expert in the field of speech and language disorders, and a clinical psychologist is not licensed or qualified to assess language disorders and delays. (Which, incidentally, is the position of ASHA, since you keep linking those two generic articles from there.) If it walks like a duck and quacks like a duck, don't assume it's a cat in a duck suit. I am, however, starting to think that you might need a full neuropsych to determine the underlying cause of your almost obsessive interest in having all children past age 5 evaluated.[/quote] :thumbup: You don't want to keep testing kids over and over again. That's far worse and unnecessary. You can have a diagnosis without a neuropsych and a diagnosis is just a label, nothing more. It doesn't change things except to please people like you.[/quote]
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