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[quote=Anonymous][quote=Anonymous]Hi op.  Me again.  I also wanted to add.
Since it started so young it is very possible your daughter had another medical condition going on that made her averse to food to begin with
This was the case with me.  I had food allergies and generally was never a big eater and food made me feel sick so when I needed a coping mechanism starving myself wasn't a far stretch
Do you suspect she has any allergies or other medical issues?
Not that it helps too much after several years, but maybe it helps you understand the why more
I know for many people they can't understand how one can starve like this
Is she managing her own food intake now or are you on a certain plan or requiring her to eat etc
[/quote]

I'm so sorry to read your post OP - this is such an awful situation for you, your daughter and your family.  I will tag on to this post above because that was our experience too.  Also I can see you are trying to leave no stone un-turned. Our DK was diagnosed last year with several tick illnesses - we got lucky and had some positive tests which can be rare as many of the tests are very unreliable (tick diseases can cause every symptom imaginable and mainstream doctors can't figure out what's going on and refuse to make clinical diagnoses but there are specially trained doctors who can and do treat). Anyway, anorexia is one of the symptoms and we were greatly concerned in the years prior to diagnosis if DK had an eating disorder because DK just wouldn't eat for long periods of time - days actually or would eat very little of the same foods - I realize this may be completely different from your daughter's trajectory. However DK went from not liking food (taste was off evidently and bugs were causing lack of hunger etc) to a place where DK gained 2 pounds a week when antibiotics were started for treatment at age 14. Treatment is years long and DK still has periods of little hunger but weight has stabilized now.

DK also showed signs of anxiety the last year before we figured out what was going on and had started cutting.  Many other unrelated symptoms in other major body systems (cardiac, respiratory, joints etc) showed up as well after years of these diseases taking over. All this occurred from a tick bite(s).  It was very hard to tease out the symptoms from a 14 year old because they were mostly invisible to us.

Some kids present just with the neuropsych stuff though so I wanted to bring it to your attention - especially since your DD was so young when this started as was our DK.  I will also let you know that thousands upon thousands of patients have had illnesses such as your DD's and others that were not affected in any way by treatment for whatever they were diagnosed with - this failure to respond to prescribed treatment is a sign of an underlying bacterial type infection. Once they figured out they had these diseases they were then treated and made great progress.

I sure hope you find some things that work from the suggestions given in this thread. [/quote]

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