Reply to Feeling so blue...How to live with DD's chronic illness?

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[quote=Anonymous]I can totally sympathize, and you are mourning the loss of your old life and the life you wanted...for yourself as well as your daughter. As someone who was diagnosed with severe GI issues in my early teens, I recommend keeping things as normal as possible for the other sibling. It is easy for your daughter to also start feeling guilty about the impact she is having on the family, and she will feel even more guilty if she thinks her condition is making you sad or preventing her sibling from doing things he/she wants to do. 
I know how your DD feels about the embarrassment bc I felt that also and still haven't told many ppl about my diagnosis. That worked for me, but not others-all depends on your personality and support system. 
Also, allow yourself to have some hope. My condition is chronic and will be lifelong, but I was able to go to college away from my parents, have a career, married and have kids. All things the dr said would be impossible when I was diagnosed, initially in the hospital and then home bound for months. Things will get better as you and your DD figure out how to manage the condition. It took me almost 10 years to figure out triggers and how to work with my body. [/quote]

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