Reply to Feeling so blue...How to live with DD's chronic illness?

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[quote=Anonymous]Hi OP,
My daughter was 9 when she was diagnosed with a chronic disease. It's fairly serious. It definitely affects the whole family.
She is 19 now and all I can tell you is although it's super hard, eventually, the family will figure out how to live. Sometimes things will suck for your other children because of your ill child. Sometimes your family will be completely "normal". Your other kids will develop the understanding that being part of a family means that you support your family. They will be empathetic and understand selflessness. 
My only suggestion is that the family be as open and honest as possible.
For instance, our family used to go on beach vacations every year and the ocean was a big part of our life. After my daughter got sick, she could no longer spend more than about 30 minutes a day in sunlight. So we had to make major life adjustments. I sat down with my boys that first summer and had a really honest discussion with them about how cool they were, how proud I was of my family supporting eachother, etc,

My boys have grown up with really big hearts. My son is now looking at colleges, and one thing he is looking at is trying to be close to home in case his sister needs him when she is sick. I'm torn: I want him to go far away and experience his own life, but at the same time I'm proud of the boys and the men they are becoming. [/quote]

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