Reply to Feeling so blue...How to live with DD's chronic illness?

Forum Index » Kids With Special Needs and Disabilities

Reply to "Feeling so blue...How to live with DD's chronic illness? "

Subject:

Emoticons





More smilies

Text Color: Font: Close Marks

[quote=Anonymous][quote=Anonymous]This sounds like encopresis, which can be caused by a number of underlying medical conditions (food allergies, Chron's, anatomical issues, etc) or can be behavioral. My 8-yr-old daughter has dealt with this since age 3. It was disruptive to the whole family just like yours until I understood what was going on and learned to manage it. We are still looking for just the right daily maintenance routine, but have come a long way. My daughter and her sister are able to have a real childhood now that I manage this condition.

Pediatricians generally don't know anything about this so move on to a specialist ASAP. Ped GI is the place to go, but many know only one treatment- Miralax- and that doesn't help many of these kids. They lose nerve function in the rectum and don't feel the urge to go until the last second (urgency) and if the poop is too soft they will have accidents.

It has been a long process for me but I've found the best strategy is to love her unconditionally and never stress about potty issues- make the potty issues a project we are working on together instead of me against her bowels. Then daily suppositories or enemas to keep things moving.

The best ped GI for enco in this region is Dr. Stephen Borowitz at UVA Children's Hospital in Charlottesville. Some other resources for you:

Dr. Fredric Daum- ped GI in NY who does telephone treatment- http://doctordaum.com
Dr. Steven Hodges- ped urologist- http://www.bedwettingandaccidents.com
Dr. Robert Collins- behavioral psychologist- http://www.encopresis.com
Dr. Mark Levitt- ped colorectal surgeon, NationwideChildren's Hospital in Columbus OH, residential program- http://www.nationwidechildrens.org/bowel-management-bootcamp[/quote]

How interesting.
Is there any way to regain nerve function in the rectum?

Support group list serve for parents of enco kids around the world- very helpful!!! encopresis_kids@yahoogroups.com[/quote]

Options

	Disable HTML in this message
	Disable BB Code in this message
	Disable smilies in this message

Review message

Search Recent Topics Hottest Topics