Reply to I'm lonely and sad and scared today. Positive vibes thread.

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[quote=Anonymous][quote=Anonymous]I just don't know anyone else in real life. And on here, where people are so great and supportive, my son's issues always sound more overwhelming and challenging that others. Everyone on here always has a bright, high IQ kid with issues, and I don't think that is our situation, at all. It is just so lonely. I feel like I am always acting at work, when I am asked about him, and out and about. It is tiring and isolating. I need to join some support groups. [/quote]

I'm one of the PP's who sent you hugs earlier. Just to let you know there are several of us with children with profound impairments for whom so-called "normal" life will never materialize. My DS is 10 and I don't know if he can ever be left alone in a room, much less function independently or even cross the street himself. For us, while we are doing are best to make things better for him, the worry is constant too. I don't put on an act at work or try to make things seem more pleasant than they are. Pretending would cause me more anxiety. I try live in reality and hope that I am doing my best and look for small, positive steps for him. My Dh and I decided that our way forward is to always emphasize that DS is a joy to us, even those times he's smeared vaseline all over expensive furniture or acted aggressively. It is overwhelming and challenging just like you say. You need to be free to acknowledge that but also not wallow in it. Acting or pretending will make you sick and more depressed, seriously. That doesn't help you or your child. Support groups could help you. I hope this makes some sense.[/quote]

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